If you have a friend or family member with Hoarding Disorder, it can be very hard to know how to help. Severe clutter threatens the health and safety of those living in the home and can be a source of conflict. It’s important to educate yourself on HD and seek support to help you manage your own feelings and learn coping strategies.
Mutual Support for HD is a platform that offers virtual support groups and resources for individuals dealing with various mental health challenges, including hoarding disorder (HD). The website provides access to online communities where people can connect in a safe and supportive environment, share experiences, and find encouragement. Its virtual groups often focus on specific topics, helping members work together to address challenges and improve their mental health.
Center for Hoarding and Cluttering is an organization dedicated to supporting individuals impacted by hoarding disorder. It offers resources, education, and advocacy to address the challenges associated with hoarding behaviors. CHC provides services such as support groups, training, and consultations for individuals, families, and professionals, aiming to foster understanding and promote effective strategies for managing hoarding and improving overall well-being.
Institute for Challenging Disorganization is a nonprofit organization dedicated to education, research, and strategies for addressing chronic disorganization, including hoarding disorder. It offers resources for individuals, families, and professionals, including training programs, publications, and a robust support network. The ICD aims to empower people to create sustainable organizational solutions and improve their quality of life while raising awareness about the challenges of disorganization and its related conditions.
International OCD Foundation offers a dedicated resource center focused on hoarding disorder. This platform provides comprehensive information about the condition, including diagnostic criteria, treatment options, and support resources for individuals, families, and professionals. It aims to raise awareness and understanding of hoarding disorder, promoting effective interventions and support strategies.
Wellington-Guelph Hoarding Response offers comprehensive resources and support for individuals dealing with hoarding behaviors, their families, and service providers. It emphasizes harm reduction, safety, and person-centered care. WGHR provides tools like risk assessment scales, educational workshops, and e-learning modules tailored to address hoarding challenges. Their services include free community presentations, annual workshops with expert speakers, and collaboration with local agencies to create multidisciplinary support teams
Center for Hoarding and Cluttering – Uniform Inspection Checklist
The Center for Hoarding and Cluttering offers a comprehensive inspection tool called the Uniform Inspection Checklist (UIC), designed to assess and track safety and sanitation in environments affected by hoarding. It emphasizes a harm-reduction approach and aims to support individuals, families, and professionals in addressing both physical and psychological aspects of hoarding. The checklist is based on a variety of standards, including housing codes, fire safety, and health guidelines, and provides measurable progress markers to guide intervention. It is adaptable for use by both trained professionals and other parties involved in hoarding situations.
The Institute for Challenging Disorganization – The ICD Clutter- Hoarding Scale
The Clutter–Hoarding Scale® by the Institute for Challenging Disorganization (ICD) provides a detailed framework for assessing household clutter and hoarding. It uses five levels of assessment, ranging from Level I (low) to Level V (severe), with specific categories to evaluate the environment, including structural integrity, animal and pest control, household functionality, and health and safety.
- Level I (Green – Low): This represents a standard household with no significant issues. All systems (plumbing, electrical, HVAC) are functional, and there is no clutter obstructing household functions.
- Level II (Blue – Guarded): Here, a major exit is blocked, and some systems are not functioning properly. There may also be minor issues with animals or pests and slight clutter in key living areas.
- Level III (Yellow – Elevated): At this stage, clutter significantly obstructs household functions, and some rooms may not be used for their intended purposes. There is also evidence of pests or sanitation issues.
- Level IV (Orange – High): More severe clutter and potential structural damage are present. The situation requires a collaborative team of service providers, such as pest control or mental health professionals, to address the issues.
- Level V (Red – Severe): This level indicates extreme hoarding, where multiple systems are non-functional, and health and safety are at risk. The environment may be dangerous and requires immediate intervention.
This scale helps professionals determine the degree of support needed in hoarding situations, with Level III often being a tipping point where deeper intervention is necessary.
The International OCD Foundation – Clutter Image Rating Scale
The Clutter Image Rating (CIR) tool, available on the International OCD Foundation’s website, is a visual scale used to assess the degree of clutter in a household. It helps clinicians and individuals gauge the severity of clutter by comparing photographs of different living spaces at various stages of clutter. The tool includes a series of images, each representing a different level of clutter, ranging from minimal clutter (Level 1) to severe hoarding (Level 9).
Each image depicts a household space with varying amounts of clutter, which helps those affected by hoarding disorder recognize where their environment falls on the scale. It can also guide professionals in determining appropriate interventions.
Wellington-Guelph 10 Steps to a Safer, Healthier and More Comfortable Home
The Hoarding Response Checklist from the West Greater Toronto Hoarding Response is a tool used to assess and guide intervention for hoarding situations. It is divided into two sections: the first helps evaluate the severity of the clutter in a living space, and the second assesses the potential risks associated with the hoarding behaviors, including health and safety hazards.
This checklist is a comprehensive tool for professionals and teams working to intervene in hoarding situations. It provides structured guidelines to ensure that all critical factors are considered in the assessment, from structural issues to sanitation, safety, and health.
Children of Hoarders (COH) is a supportive online community and resource hub dedicated to individuals who grew up in hoarding environments. The website provides education, resources, and connections to help users better understand hoarding disorder and navigate its emotional and practical challenges. With forums, articles, and shared stories, COH fosters a space for healing, advocacy, and mutual support.
Family As Motivators
Gregory S. Chasson, Jenna Ewing, Ashley A. Carpenter, and Brittany Gibby Towson University – Contact Us to Request a PDF for sharing
- Buried in Treasures, 2nd Edition. David F Tolin, Randy O. Frost, and Gail Steketee, 2014
- Stuff: Compulsive Hoarding and the Meaning of Things Randy O Frost and Gail Steketee, 2011
- Making Space Clutter Free, Tracy McCubbin, 2019
- Digging Out: Helping Your Loved One Manage Clutter, Hoarding and Compulsive Acquiring, Michael A. Tompkins, Tamara Hartl, Randy O. Frost (forward) and Gail Steketee (forward)
MN Elder Justice
Providing support and resources older adults and their loved ones.
- Direct Services: https://elderjusticemn.org/our-services/victim-services/
- Upcoming webinars: https://elderjusticemn.org/webinars/
- Video library: https://elderjusticemn.org/resources/video-library/